Hey guys. Boris here. I wanted to check in with everybody and give you all a quick update on the Kodjoe's life.
I'm currently filming a movie in Toronto until December and I'm flying home as much as I can on my breaks. Nicole is at home preparing for her big Broadway debut as Blanche Dubois in 'Streetcar Named Desire' in March. Nicolas, 4, is in Kindergarten and playing Soccer, Tennis, and Basketball, and Sophie, 6, just started first grade and has been attending the Debbie Allen dance academy for ballet and flamenco.
To see Sophie dance with all the other girls was the proudest moment for me and Nicole. For the past 6 years we have been hoping and praying for her to be able to do as many 'normal' things as possible. Still, our hearts sink every time she has an 'accident' in school or on the playground, and we rush in to make sure she's perfectly clean and in no danger of getting another UTI.
We still go to her school every three hours to make sure she catheterizes herself properly and on time. And we make sure she drinks her 'green lemonade' full of kale, spinach, apples, and lemon every morning. Her nightly acupressure massage is a ritual, and she knows to strengthen her leg muscles by using one leg at a time to go up the stairs.
'Management' is the term we've gotten used to as we continue to look for possibilities for a cure sometime in a hopeful future.
And last but definitely not least, Nicole and I went on our first vacation in 4 years without the kids. Just three days seemed like paradise. And we realized that it all has to start with the two of us. We were here first. And we need to pay attention to each other and be present for each other, every day, at least once or twice, no kids!
Dealing with SB has made us stronger and more focused, but it also has made us shut off everything else that seemed like a distraction at the time. We just couldn't deal with anybody or anything else. All our attention went to this 'new norm'. We didn't know how else to do it. And as a result we were bad friends to those who love us. Sometimes we didn't even know how to accept support because we were so focused on us.
So now we are trying to be better friends again, to include our circle and to give back. I'm sure you guys can relate. We can only do so much, and we can only do it at our own pace. It's ok.
Love
boris :-)
