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emathome

Registered: 27/11/10
Posts: 5

    28/11/10 at 10:52 PMReply with quote#1

I would like to know who has doctors that deal specificall y with Spina Bifida?  When I was little until I became about 16 I went to a Spinal Defects Clinic through Childrens Hospital, but then I had to change hospitals.  I have pretty good doctors, but I feel sometimes like they just don't know what to do with some of my latest symptoms.  It would be nice to at least have a doctor to consult with that deals with Spina Bifida patients.......Adult ones.  I think as you get older you have diffeent or worsening symptoms.  Maybe I'm wrong, but I have had an intense year.

momto3inmn

Registered: 29/11/10
Posts: 1

    29/11/10 at 08:03 AMReply with quote#2

Hi,
I am not sure where you live, but I have a young daughter (10) who has Spina Bifida and she goes to Gillette Childrens Specialty Healthcare in St. Paul, MN (they have a specialty clinic for Spina Bifida). 

I was told as she gets older she then can go to Gillette Childrens Lifetime Specialty Healthcare in St. Paul. They are located at 435 Phalen Blvd. in St. Paul, MN. From their website-

At Gillette Lifetime Specialty Healthcare, we see teens (16 and older) and adults who were diagnosed during childhood with conditions that limit their abilities. We’re part of Gillette Children’s Specialty Healthcare, which for more than 110 years has provided medical care and therapy to people who have disabilities and complex medical conditions. Since 2001, Gillette Lifetime has focused on the needs of older teens and adults. After opening at the New Brighton Clinic, Gillette Lifetime expanded our services and moved to the St. Paul – Phalen Clinic in 2007.


Spina Bifida

If you have spina bifida, you can obtain a full range of services at Gillette Lifetime. Our neurosurgeons, urologists, and physical medicine and rehabilitation physicians address the lifelong issues related to spina bifida, including bowel and bladder concerns and walking difficulties.

I hope this helps! Take care!


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