jamiemae23
Registered: 29/12/11
Posts: 1
|
| | 29/12/11 at 10:11 PM | Reply with quote | #1 |
|
My little family has had an eventful year. To our excitement, in September we found out we were having a baby! A month and a half later our baby girl (yes, it's a girl! was diagnosed with SB. As we met with the genetic counselor and then a specialist, who confirmed the diagnosis, I felt denial flow through my blood stream. I didn't know very much about SB but still asked as many questions that I could choke out between the tears. They presented us with all the options including terminating the pregnancy. After the meeting, I raced out the door, feeling the buildup of emotion & as soon as I touched the car door, broke down. I sobbed for about 10 minutes and my honey comforted me the best he could. I took some deep breaths and put myself back together. My honey and I then decided our baby girl is a blessing, no matter what our life holds as parents of a child with SB, we have chosen to approach this pregnancy with the same excitement we had when we found out we were pregnant. We have more appointments than most and will have to travel to UCLA for delivery and surgery, but we are proud parents despite any obstacles that may come in our future.
I'm glad we found out early in the pregnancy because I've been able to read a lot about SB and try to prepare for the coming days. During that reading I found something that touched my heart and I'd like to share it with all of you:
"There have been many times when I have felt blessed by having a child with special needs. The time that comes to mind is when I realized that God must have thought a lot of me to give me a child with spina bifida. He must have thought I would be a good parent for her. We talk about people having faith in God but I think sometimes God shows he has faith in us." - anonymous parent
We love our baby girl!!
Jamie Mae
__________________
Jamie Mae
|
| Loading... | |
JayColgate
Registered: 09/02/12
Posts: 4
|
| | 09/02/12 at 08:29 PM | Reply with quote | #2 |
|
Hi, I'm Jason, Jamie Mae's Honey. I've been wanting to post on here for a few weeks. This week has been one of the most difficult for me, so I figured today it is. We're at 31 weeks today. It's been such an emotional rollercoaster. I'm so excited for our little girl to get here, yet, I find myself being overcome with emotions at the most random moments. I know I love my family, and I'm supposed to be that strong, rock of a Man that they can lean on. It's just...it's my little girl. I know you couldn't ask for 2 stronger advocates to have. We will be very active. I've noticed there aren't many resources in Central California, or even the Los Angeles area? |
| Loading... | |
